Who is Stembrella?
We are so excited to announce that we have partnered up with an amazing organization called Stembrella. They have decided to be one of our new corporate sponsors. They are really helping us launch our not for profit organization and support us in our effort to helping change children’s lives. We have created a synergistic relationship with Stembrella in helping them create a donation platform for children in their programs. Not only are we helping them, but they’re helping us and our cause by generously donating to help kids stay healthy and active!
“We are a dedicated and experienced team of leading physicians and scientists devoted to treating patients with advanced and incurable ailments whilst continuously searching for better stem cell therapies and cures. After years of extensive experience, we have been able to develop a comprehensive procedure for administering stem cells in a very precise and customized regime which is patient friendly. We aim to achieve the highest possible results, whilst adhering to the highest levels of patient safety. This therapy is known as autologous stem cells also know as augmented stem cells therapy.”
We believe in a preventative approach to combating diseases that effects the heart, lungs, and other major organs. Here at Change for Change we help kids make better lifestyle choices to help prevent some of the diseases that Stembrella is fighting to treat! Help both of us, help our youth! Below we have stories of two incredible young boys, who both need our awareness and help. Please take the time to read about the two, we believe that their stories will touch your hearts.
You can check out Stembrella and their cause at www.stembrella.org
Aiden Purich is 14 year old boy who’s been suffering from Lyme disease since May 2014, he was only 10 years old when he was bit by a tick. He was a healthy, lively young boy who enjoyed sports, playing the drums, skating boarding and just being a normal kid. All of that changed from just one bug bite.
After Aiden was bit he started to suffer from weakness, high fevers, sharp stabbing pains in his leg, and flu like symptoms that would come on aggressive and fast. These manifestations would then turn to more serious symptoms over time, even life threatening complications. Aiden started to suffer from schizophrenic like states, hallucinations, severe heart palpitations (which doctors were concerned of a cardiac arrest), chronic neck pain and stiffness, excruciating sharp burning pains (that would attack his whole body leaving him curled in a ball screaming in agony), light/sound sensitivity, bowel/digestive complications, headaches, air hunger, cognitive issues, short term memory lose and peripheral neuropathy which resulted in Aiden having to use a reclining wheelchair.
Peripheral neuropathy refers to the conditions that result when nerves that carry messages to and from the brain and spinal cord are damaged or diseased. This caused Aiden severe hyper sensitivity to his entire back. Even the slightest touch would cause him pain. Aiden took a turn for the worse in May 2016 and spent many days in and out of the hospital. Aiden sadly was unable to ever finish grade 7 and was unable to attend grade 8.
What’s so heartbreaking about Aiden’s story is Lyme isn’t well understood in the medical community and testing is inaccurate. Aiden suffered for years due to the fact that he couldn’t get a proper diagnosis or treatment. Aidens mother knew in her heart her son was suffering from Lyme disease and fought to find a doctor who would treat him. Finally in August 2016 the Purichs saw a Lyme doctor who confirmed what they had already suspected. Aiden tested positive for four co-infections of Lyme disease that all can be potentially fatal without treatment. Aiden has been on close to 30 different medications and supplements a day which is not only hard on his poor body but it’s financially draining for the family.
The Purichs feel blessed that thankfully some of these medications have helped some of his symptoms, but not all. While others have continued to get worse. The family is hoping that with Stem Cell Therapy Aiden will finally get his childhood back and not have to suffer in pain every single day. Aiden has expressed to his family how tired and frustrated he is and just wants to live a normal, happy, healthy life… the life he once knew.
Avyn The Bold
Avyn Nolan Atkins was born on Christmas Day, December 25 2012. He was a very healthy boy with not 1 complication at birth. At 2 years old upon returning home from his required vaccinations, there was a change in Avyn’s eyes and his response to stimulus around him suddenly stopped. His mother has been on a quest for answers ever since.
Two years later Avyn was diagnosed with Autism spectrum disorder and his mother was told he would have developmental disabilities for the rest of his life. That has led to difficulties with his daily routines, social and communication skills.Avyn has been receiving therapy on a regular basis since his diagnosis and up until 5 months ago Avyn has been mostly non-verbal. He has now made progress and has learned to put together a couple 6 word sentences; however this development is far below 5-6 year old peers of his age.
Avyn is a flight risk; he walks on his tippy toes, is sensitive to light, cannot sit still for long and is socially inappropriate. He has little to no fear, however he has constant night terrors that last for months. Since Avyn cannot talk he is unable to properly communicate which makes everyday life a struggle for him. Avyns loved ones know he is bigger than Autism. He has a huge heart full of love and generosity. He so dearly wants to express himself but his disability is holding him back from the independence he fights to gain every day.
Avyn is brilliant and a helpful, happy loving boy who makes everyone laugh but he is suffering every day. Stembrella is giving Avyn’s family the answer they are longing for, but most of all to be able to give the chance to make a change in his everyday life for his future through Change for Change.
Aarav Seth is a child with exceptional capabilities who was born on 19th October 2014. Aarav travelled to India on 7th March 2016 to live with his guardians where he was capable of writing, reading, recognising shapes and colours at the age of 2 and a half. He was exploring the world by being very active and keeping everyone in the family busy with his innocent talks and activities.
No one knew what was on the way July 2017. His family noticed some changes like crying, laughing and talking while sleeping at night. The family thought it was normal as he may be tired from his day to day activities. By the end on July, Aarav had difficulty walking which was shock for the family. A doctor was consulted to clarify the reason and an MRI was scheduled.
With hard to find veins, he had to go through the procedure three times to get the MRI done which confirmed DIPG on August 2nd 2017. Broken hearts and cries left for shattered family as there is currently NO CURE. Immediately Aarav’s parents brought him back to Australia and he was taken to the Women and Children Hospital Emergency Department. Aarav was able to talk, eat and walk at this stage with very little difficulty.
After another MRI in WCH, family was told that prognosis of disease is 9 months. The Palliative Care team was involved to make his end of life journey comfortable. The family did not give up and decided to have 6 weeks radiation treatment with tears in their eyes and pain as no other options left to save their child and to buy some valuable time.
Aarav had surgery on August 18th 2017 where a PICC line was insertedto get blood and to give sedating agents. After 2 days of radiation therapy, Aarav’s condition deteriorated as he started vomiting, facial droop increased and was unable to talk. Aarav was diagnosed with hydrocephalus. He had another surgery on August 25th 2017 and a VP shunt was put in to maintain the balance of fluids in the brain. At this stage, Aarav lost his ability to walk, talk and even swallow. Radiation therapy completed on October 13th 2017 and there has been no further active treatment for DIPG.
His parents are not ready to give up and thus have decided to hold hands with team of Stembrella in New Delhi, India in the hope of making impossible to possible to save AARAV. The treatment is very expensive. PLEASE HELP OUR FAMILY TO SAVE LITTLE AARAV.
The process isn’t over for Aarav but we have managed to raise enough funds to make Aarav’s miracle happen. He is currently undergoing the stem cell treatments and although we aren’t asking for donations for him at this time, we are asking for prayers for Aarav and his family.
Aarav’s Treatment Journey
Part of the Procedure
Post Treatment Interview With His Guardians
Children We've Helped in the Past
Meet Tristan The Brave
Tristan is a 3 year old boy who is battling against Diffuse Intrinsic Pontine Glioma (DIPG). He was diagnosed on October 21, 2015. His parents can’t stress enough how much his diagnosis has been a struggle on a day to day basis, DIPG does not let you rest for a second. Tristan lost his ability to walk or stand still without losing balance, and needed assistance to do simple things he could manage before his diagnosis. He suffered from severe double vision, facial paralysis, speech difficulty, trouble swallowing, and behavioural struggles that was accounted to the pain that he wasn’t able to express. His tumor grew so large that his parents were told that if they didn’t do radiation right away, Tristan might not be able to make it to Christmas (which was 3 months away at the time). Tristan underwent 6 weeks of radiation to gain some relief, and shrink the tumor enough to buy some more time to search for a miracle.
Thankfully, Tristan made it through with great success with the help of a strict Organic diet and holistic protocols. Here at Change for Change we want to help Tristan continue to thrive, heal and beat this diagnosis. We are helping them raise money and support them to help pay for Tristan’s Naturopathic team of doctos, his health protocals, organic diet and keeping him the happy child he deserves to be. We also want to help them with any clinical trials that they have the opportunity to participate in, but they are all out of country and all at his parent’s expense.If anyone would be so gracious to help Tristan and his family, we will be accepting donations towards his cause.
He is a smiley, happy, 5 year old who is a member of a big family. Joshua started speaking and dancing at the age of 1, and has such a loving and supporting family. After his 12 month and 18 month vaccinations, his mother found that he was starting to lose his hair and then became completely bald after 3 months. When all of this was happening, he also lost all of the language he had aquired and no longer spoke. His only form of communication was screaming and he would run and jump everywhere. He lost all of his behaviour, and hardly ate anything anymore besides milk and pureed food.
Shortly after everything started happening, they had brought Joshua to a private hospital to see a neuropsychologist specialist, and after several tests, Joshua’s family had learned that he is Autistic. His family decided the best thing to do for him was be their best, and never give up. Joshua is now taking therapy, but the progress is very slow. Joshua still does not speak, he only communicates by pictograms, he has a hard time sleeping at night, and often cries without reason. They have discovered Stembrella, and the wonderful organization that they are, and want to help Joshua have the best life possible. The treatment that he requires costs a large amount, and they can not cover it by themselves. That’s why they have asked us at Change for Change for help!
Joshua Before Treatment
- Dependent on mother and father for personal hygiene and activities of daily living.
- No eye contact while interacting with people.
- No interest in writing
- Could not communicate, only babbling
Joshua After Treatment
- His concentration levels are up.
- Social behavior has improved a lot, he started smile in social situations, saying Bye-Bye, taking care of her younger sister in terms of not hurting her or calming her down when she cries.
- He initiated hand shaking while greeting people with fair eye contact.
- His attention and concentration and sitting span time has increased from1-2 minutes to 10-15 minutes in any task like rhymes listening or flash card learning activity or in puzzle solving activity etc.
- He has started drinking water on his own and taking bath by himself (ADL Training)